Updating Family on a Loved One’s Health Is Exhausting

If you've ever had to keep family updated about a loved one’s health, you know how frustrating it can be. I’ve lived it firsthand. Both of my parents had dementia, and while my wife took on much of the hands-on caregiving, the constant stream of updates to siblings, in-laws, kids, and concerned friends became a job in itself.

I’d get a call from one sibling asking about Mom’s latest doctor visit, then another asking if Dad was eating well. Meanwhile, my wife was fielding texts from extended family who hadn’t heard an update in weeks. By the time we got everyone up to speed, the day was gone, and we were drained.

Why Is It So Hard?

It’s not just about having information, it’s about getting it to the right people, at the right time, without repeating yourself a dozen times. We tried everything:

• Group texts: Great until messages get lost in the shuffle.

• Emails: Nobody reads them on time.

• Phone calls: No time, and who wants all the advice?

• Social media: Too public and impersonal.

• Google Docs: See email ;)

The result? Miscommunication, frustration, and family tension. Some people felt left out, others felt overwhelmed, and no one had a simple way to stay in sync.

There Has to Be a Better Way

That’s why I’m building a Family Care Coordination App (TwixTalk), something I wish I had then and will probably need again. A single place to keep friends and family informed, share updates in real time, and make sure no one is left in the dark. No more playing phone tag or trying to remember who knows what.

Through this Substack, I’ll be sharing what I’ve learned about family caregiving, communication, and practical ways to make it all a little easier. If you’ve ever struggled to keep family updated, you’re not alone, and I’d love to hear your story.

What’s been the hardest part of keeping your family in the loop? Reply and let’s start a conversation.